Survivorship. Barrie Cassileth

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Survivorship - Barrie Cassileth

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      Copyright © 2014 Barrie R. Cassileth

      All rights reserved under International and

      Pan American Copyright Conventions.

      No part of this book may be reproduced or transmitted in any form or by any means electronic or mechanical including photocopying, recording, or by any information storage and retrieval system, without permission in writing from the publisher.

      This edition is published by Spry Publishing LLC

      2500 South State Street

      Ann Arbor, MI 48104 USA

      10 9 8 7 6 5 4 3 2 1

      Library of Congress Control Number: 2013949027

      E-book ISBN: 978-1-938170-36-2

      Disclaimer: Spry Publishing LLC does not assume responsibility for the contents or opinions expressed herein. Although every precaution is taken to ensure that information is accurate as of the date of publication, differences of opinion exist. The opinions expressed herein are those of the author and do not necessarily reflect the views of the publisher. The information contained in this book is not intended to replace professional advisement of an individual’s doctor prior to beginning or changing an individual’s course of treatment.

       To my husband and children

      for their forebearance, support, and creative ideas, with all my love and appreciation.

       To our patients

      for their remarkable bravery and our integrative therapists and physicians for their devotion and expertise.

       To patients and cancer therapists everywhere

      for their ability to give and live to the fullest under the most difficult of circumstances.

       A special thanks

      to Ian Yarett. We were fortunate to have him with us at MSKCC for a year before he started medical school, and he worked tirelessly to put together the first draft of this book.

       Contents

       Physical Activity

       Acupuncture

       Mind-Body Therapies

       Massage

       Creative Therapies

       Part Three: Symptom Relief with Complementary Therapies

       Managing Pain

       Fatigue

       Anxiety, Stress, and Depression

       Nausea and Vomiting

       Hot Flashes

       Sexual Dysfunction

       Xerostomia

       Insomnia and Sleep Disturbance

       Lymphedema

       Neuropathy

       Appendices

       Scam Alert

       Your Healthcare Team

       Resources

       Glossary

       Index

      Many years ago, I completed a doctorate in medical sociology at the University of Pennsylvania. For my thesis project, I chose to spend a year studying the dynamics of care on the adult leukemia unit of the Penn’s Cancer Center, a small cluster of beds adjacent to the Center’s research laboratories. What I found that year not only became my thesis, it molded my lifelong profession.

      I found a world filled with terribly ill adults, mostly young or in their middle years, and I encountered their husbands, wives, parents, and children, all of whom suffered just as much, knowing that the prolonged and difficult treatments had a small chance of success. Physicians, nurses, and other staff faced similar challenges as they guided their patients through treatment, aware of its limitations and of the gaps in scientific knowledge underlying it.

      It became clear to me that more was needed than simply caring for each patient’s leukemia, as difficult and consuming as that was. A host of physical, emotional, and interpersonal problems screamed for attention. Identifying them and outlining ways to approach them became my thesis and later a book, The Cancer Patient: Social and Medical Aspects of Care.

      After that year, I was asked to stay on to establish a program that could address these issues. We called it the “Psychosocial Program.” Under that rubric we created support services for patients, families, and staff, established the first palliative care and home hospice programs based in an academic medical center, and conducted multiple research studies.

      In 1999, I was invited to bring all that I had learned and developed over the previous decades to Memorial Sloan-Kettering Cancer Center, the world’s preeminent cancer hospital, and to create a new kind of department, an Integrative Medicine department. This was an opportunity not only to bring the field to a new plateau, but to produce a program that could be a prototype for other hospitals around the world, and that is exactly what happened. The various elements of our program focus on patients’ needs throughout the full spectrum of their treatment and well beyond. Helping survivors and their loved ones to live strong and stay well is the major goal of what we do. Survivorship from diagnosis on presents new challenges, and survivorship is

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