Me and My PDA. Tamar Levi

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Me and My PDA - Tamar Levi

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things you struggle with today may even change (become more or less troublesome) depending on the way you feel or what is going on around you. Therefore, it may be a good idea to use pencil so you can change things you’ve written and erase things that are no longer difficult for you.

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      So, are you up for doing a little acting as our teacher? I bet you can teach us all what you are finding out about your PDA as you go through the book. In your role as our teacher you can tell us which of the struggles people with PDA may have apply to you, and which ways of dealing with their difficulties work for you.

      We would like you to remember that:

      You are the best teacher about YOU.

      You are the expert about YOU.

      Your parents, teachers and everyone who cares for you and is part of your life are really looking forward to learning from YOU about YOU.

      You may want to do a drawing of yourself here dressed up as a teacher. In your picture, you may be teaching a lot of people, or just the most important people in your life. Would you prefer to be sitting down or standing up, walking around while explaining or writing it all down? If you prefer to dress yourself up as one, you

       could ask your mother, father or a teacher to take a

       picture of you in your very own teacher costume

       and stick it up here, or you may

       prefer to take a selfie.

      So, teacher, are you ready to

       prepare a whole lesson about

       your PDA? Shall we get our

       pencils out and start reading

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      and ticking boxes? Or maybe you prefer someone else to read it out loud and tick the boxes for you? Your choice!

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      Challenges You

       May Struggle With

      Demands, demands and more demands!

      We have learned from the children and young people

       with PDA we have met that they struggle a lot to cooperate

       with demands.

      We have learned from them how incredibly anxious being asked to do things can sometimes make them feel.

      You may find it very hard to do

       what others want you to do

      bulletDo you feel that the world is forcing you to behave in certain ways that you don’t want to, that you don’t see the point of?

      bulletDo you feel people around you are placing constant demands on you that you are unable to meet?

      bulletDo you find it very hard to do what your parents and teachers ask you to do, even things you know you are able to do?

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      bulletDo you think you have the same rights as the adults around you – such as your parents and teachers – and don’t understand why you should do what they tell you to do?

      bulletSome young people with PDA have told us that they struggle when their parents ask them to do the things they need to do to get ready in the morning or to go to bed, such as getting dressed or brushing their teeth. Do you find these routines difficult?

      bulletDo you find it hard to do something if it is asked using a sign, for example, ‘Don’t walk on the grass’ or ‘Keep quiet’?

      Some children have also told us they find it difficult

       when their parents ask them to get ready for

       school or when their teachers ask them to

       do things such as doing some homework

       or getting changed for sports. Do you

       find any of these things difficult?

      Would you like to write down the demands

       you find tricky?

      • I struggle when my parents ask me to:

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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      • I struggle when my teachers ask me to:

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      • I struggle when other people (you can write their names here if you want) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      ask me to:

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

      . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .

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      You can do it! You can’t do it!

      Some people with PDA have tried to explain to us how it feels when they are asked to do something that they are perfectly able to do. Some explained that it felt like if they

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