The World I Fell Out Of. Andrew Marr
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My frequent challenge was a game for children aged five plus using a pair of tweezers to lift tiny coloured balls of plastic, 1970s love beads, and place them on equally tiny pegs. With enough concentration, to my amazement, the thumb and middle finger of my right found the infinitesimal amount of squeeze needed to do this. I even managed a few with my left hand as well. I glowed with the achievement.
My distorted hands in leather pushing gloves. This is after the swelling went down. My fingers soon froze in this shape.
Frequently we had FES – functional electrical stimulation. Electrodes on our wrists, wired to a battery unit, sent pulses which made our fingers lift and straighten. And strengthen. The electric pulses replicated the nerves which had been destroyed. The effects were remarkable. Leslie fantasised about putting newly spinally injured people in all-over FES suits, to kick-start everything. She focused heavily on making my left wrist flex upwards. This, I was to learn, was critical to my future.
Oxbow the ecologist had been cycling to work when his front wheel hit a pothole and he broke his neck. He could hardly move anything; his elbows were supported in slings in hand therapy so that he could try and regain a scintilla of shoulder action and be able to work the joystick of a power wheelchair. Barnaby was an older man, a former ship’s officer, desperate only to learn to feed himself so he didn’t impose on his elderly wife. He had fallen at home. He would sit, his forearms in yet another kind of sling, waving with a spoon at a bowlful of apple segments. Occasionally he hooked one and got it as far as his mouth, and his face cracked open with satisfaction as he munched.
Stoical the businessman, who had slipped on ice crossing a supermarket car park and suffered cervical damage, had, like all of us, numb fingers. But his numbness was combined with painful hypersensitivity in his fingertips. Every single session he sat, like a man on a lifelong mission, methodically scouring away at them with gentle sandpaper, desensitising them. I envied him his calm.
Priceless was an older, educated woman, a tourist, who had fallen and damaged her neck after drinking a glass or three of wine. She could still walk and her injuries, compared to the rest of us, were about as bad as a summer cold, but she was oblivious to this. Her lack of self-awareness, common tact even, was breathtaking. Viewed through her eyes, her plight was monstrous – her holiday had been ruined and her elegant handwriting was affected. She demanded the hand therapists help her restore it; she complained loudly about the nurses on the ward who refused to help her wash and dress, the state of the food, and the fact she was in pain. She was one of the very few patients who didn’t either touch or amuse me; it took me several years to understand the truth that she embodied. Everyone’s handicap is relative. We are all entitled to our own perspective on how badly we are injured. What seemed trivial to some was life-changing to others, and vice versa. The ownership of that grief belonged entirely to her; that was her right. Its impact upon her was not for others to judge. At the time, though, I just wanted to tell her to open her eyes and look around at the rest of us. And if I’m honest, I still experience a similar stir of exasperation when I am corralled by some old dear who wants to tell me how bad her sciatica is. I have learnt to smile and nod, detach myself from judgement.
After a couple of weeks, the intensive hand therapy began to reap rewards. My left hand became less stone-like, and the thumb and fingers were starting to wiggle. The wrist grew strong enough to prevent it flopping. My right hand was definitely more powerful and I could grasp an old-fashioned phone receiver, something I couldn’t have done a fortnight ago. Dave and I managed our first telephone conversation, home to hospital, which made both our hearts sing. Eventually, in hand therapy, I even managed to open an envelope, a major victory. To do this, I had learnt how to use my teeth, my invaluable third hand from now.
Afternoon gym was also becoming less unfamiliar. I was starting to recognise faces and understand the rhythm of therapy. The gym was two large spaces linked by a glass divide, and equipped with about ten pale blue physiotherapy plinths, which raised and lowered electronically. To a layman’s eyes, the landscape was hard to interpret, more like a medieval torture chamber than anything. There were standing frames and tilt tables beribboned with heavy-duty Velcro straps to bring paralysed people upright, jutting pulleys for carrying arm and leg slings, hooks hanging from mesh cages suspended over more plinths, two sets of parallel bars, a conveyor-belted machine with robot legs and a harness suspended over it, and various arm and chest weight machines. Plus, splendidly, like a piece of modern art, half a car – a Fiat cut off in front of the windscreen, which was attached nose-in to the glass partition. That was for the future, for those of us who were able. We could learn to transfer into driver or passenger seats, practising for a life outside.
Everywhere I looked, I saw devices I could not understand but was desperate to try. My desire to get better was atavistic.
Resting on one of the plinths while my physiotherapist attended to another of her patients, I could observe fellow inhabitants who were learning to mobilise their bodies and cope with their new lives. I felt all of eleven years old, wide-eyed, evaluating my new classmates at the big school. Who would be a kindred spirit? Who would have a sense of humour? Swiftly you learnt who to seek out, who to avoid. Fetlock had also fallen off a horse; she’d had a close escape, was walking wounded and would be going home soon, but she wanted to tell me, in great detail, in the way only horsey people do, about every wisp of hay and variation of snaffle bit she had ever seen. I shrank inside myself when she walked – walked, damn her – over to me, and I could not escape, because I was not in my chair.
‘So what horses have you got? I’ve got three – my old mare and my young one – it was my young one that dumped me – and then there’s my pal Sheena’s pony, I have him too, but he pulls like mad and he’s a bugger to catch and keeps ripping his rugs and I have to soak his hay. Do you keep yours at livery?’
Like I’m going to keep any horse, ever again? Please go away, Fetlock. I don’t wish to be cruel, but don’t you realise that my dream has ended, that you’re shooting holes in my soul?
I smiled up at her, and made some anodyne reply. On a cruise ship, be tolerant. Keep your own counsel.
Wee Jimmy had been shot in the spine, for all sorts of alleged reasons. You never asked too many questions. Some said it was revenge for a murder by his uncle Tam-the-Hatchet. In that sense the unit was akin to a church, a place of sanctuary where you accepted people for their needs rather than their deeds. Jimmy was gangly, mild-mannered and wary. He had the air of someone faintly bewildered as to why the staff were being so nice to him and he tried hard in rehab. He gave everyone on the ward a slice of his birthday cake and when he left hospital he made the front page of the tabloid press. As well as their victims, every now and again you got criminals in the unit with broken spines. Big Willie, one of the physiotherapists, a benign sixteen-stone barn door of ex-rugby player, remarked that over the years he’d had several as patients but only realised it when he read about the court cases in the paper afterwards. One man was later convicted of organising a murder.
‘Honestly, you couldn’t have met a nicer guy,’ said Willie, shaking his head.
Mostly we were innocent, life’s fallen jesters. Cycling and sports injuries were common. Cog was a mountain biker from down south who’d gone over the handlebars on a boys’ biking weekend in Scotland. He was semi-dazed and nauseated by tramadol. I remembered