Power, Suffering, and the Struggle for Dignity. Alicia Ely Yamin
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In international human rights law, the UN Committee on Economic, Social and Cultural Rights (CESCR) has also adopted the notion of a minimum core content as being both essential to enabling individuals to live with dignity as well as for the appropriate understanding of ESC rights as real rights.26 The CESCR has articulated the minimum core in different ways over the years. In its third General Comment, in 1990, deprivations of a significant number of citizens of “minimum essential levels” of ESC rights under the ICESCR, including essential foodstuffs, essential primary health care, basic shelter and housing, and the most basic forms of education, would be a presumptive violation of state obligations. In CESCR’s General Comment 14, issued in 2000, the “basic obligations” of states’ parties to the ICESCR with respect to the right to health in particular are far more extensive and also include measures relating to equitable distribution of health facilities, goods and services, and national plans of action with respect to health.27
The concept as well as the application of a minimum core content in international human rights has received scholarly critique for, among other things, its lack of ambition and clarity.28 Nevertheless, a legal obligation to provide a vital minimum as a matter of right is essential if we hope to begin to transform conceptions of prerequisites for dignity as well as the duties of the welfare state or “social state of law.”
Advances in Rethinking ESC Rights, Especially Health Rights
Accepting a threshold minimum is only part of a larger reconceptualization of state obligations to ensure ESC rights, including the right to health. The twenty-plus years since Vienna have witnessed astounding progress in the evolution and elucidation of international norms relating to the right to health in particular, as well as to ESC rights more generally. According to the World Health Organization (WHO), every country in the world has now ratified at least one treaty containing health-related rights.29 Treaty-monitoring bodies have issued important interpretations of norms relating to health rights, including Article 12 of the ICESCR, which are clarificatory, if not binding.30
The groundbreaking UN Convention on the Rights of Persons with Disabilities, together with significant Additional Protocols to the American Convention on Human Rights and the African Charter on Human and People’s Rights, have entered into force. Further optional protocols to various treaties, including the ICESCR, now permit quasi-judicial petitions to challenge violations of health and other ESC rights in cases where domestic remedies are inadequate. Conference declarations and other official outcome documents, resolutions from the Human Rights Council, and reports of UN Special Rapporteurs (or independent experts) have also elucidated standards relating to aspects of health and other ESC rights, even though they are not “hard law.”31
Institutional commitment to HRBAs to health and development has also greatly expanded among agencies. Intergovernmental agencies, including UNICEF, UNDP, and the WHO, now have units devoted to rights-based analysis, policies, and programming. Some donors, as well as NGOs and national governments, have explicitly adopted HRBAs with respect to issues varying from sexual and reproductive health to water and sanitation. And in 2013, the WHO published a monograph collecting evidence regarding the effects of HRBAs on women’s and children’s health.32
At the domestic level, many recently enacted or reformed constitutions, such as Kenya’s 2010 constitution, explicitly include the right to health. Further, in Nepal and elsewhere governments are enacting health policies that refer explicitly to rights principles; and where there are gaps, courts are enforcing access to entitlements. In cases from South Africa to India, and Costa Rica to Colombia,33 we have increasing examples of the enforceability of health and related rights. Beyond enforcing individual entitlements to care and preconditions, courts are transforming health policies—whether in relation to HIV/AIDS medications in South Africa, maternal-child health programming and food policy in India, or the structure of the health system in Colombia.34 These judgments are having impacts both material and symbolic on real people’s lives. Coupled with social action and political mobilization, judicial rulings are permitting members of marginalized groups—from persons living with HIV/AIDS (PLWAs) to transgender people—to conceive of themselves as fully human subjects whose demands are underpinned by notions of legal, as well as political, entitlement.
Further, health rights advocacy has not been limited to formal legal forums. In addition to pressing for international and domestic law reform and judicial advances, many human rights NGOs—especially in the global South—have been increasingly active in educational and political mobilizing campaigns around health and other ESC rights in their countries. Issues ranging from water privatization to the impacts of trade agreements on access to medicines are now being fought by NGOs as human rights issues, when in the past they would have been mere “policy issues.”
Moreover, coalitions that include both health and development groups, along with more traditional human rights advocacy organizations, have placed health and other social concerns on the democratization agenda in countries from South Africa to Peru in the last twenty-five years.35 National human rights institutions have forcefully investigated such issues as involuntary sterilization as fundamental rights concerns and conducted inquiries with respect to abuses of sexual and reproductive health, bringing about sweeping policy changes as a result.36
Increasing efforts to promote social accountability at local and national levels are being enhanced through the Internet and social media, which have permitted international and regional networks of advocacy organizations to easily share information about rights-based strategies relating to health care, food, housing policies, trade agreements, and other issues that affect poor people’s health. Programs to map violations geospatially and cell phones that permit crowdsourcing, together with other increasingly cheap technologies, will undoubtedly enable innovations in accountability for health and other social rights in the near future that are unimaginable today.
Rethinking Rights: Challenges
Nevertheless, these developments must be seen within the larger political and economic context, which is overwhelmingly dominated by neoliberal economic policies and narrow liberal conceptions of rights, including those related to health and health care, and ensuing state responsibilities. Neoliberal economic policies, in general, seek to transfer control of the economy from the public to the private sector, reducing the obligations of the state and leaving in effect market forces with respect to access to health and other social rights. All too often, the result of such policies has been to consign large populations to being “externalities” of growth or austerity policies—means to achieving larger societal ends. The needs of people who live at the edges of society in extreme poverty are often disregarded in a political and economic focus on abstract economic development goals. As a result, those affected by such policies too often find their humanity and dignity shunted aside, as they are relegated to the gutters on the road to modernity.
Despite advances in international law and at the domestic level, public policy and media discussions, as well as many legal frameworks, continue to distinguish between CP rights and ESC rights. For example, in 2007