Power, Suffering, and the Struggle for Dignity. Alicia Ely Yamin

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Power, Suffering, and the Struggle for Dignity - Alicia Ely Yamin Pennsylvania Studies in Human Rights

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EZLN Ejército Zapatista de Liberación Nacional (Zapatista Army of National Liberation) FARC Fuerzas Armadas Revolucionarias de Colombia FCGH Framework Convention on Global Health FGM female genital mutilation HRBA human rights–based approach *HRC Human Rights Council ICCPR International Covenant on Civil and Political Rights *ICESCR International Covenant on Economic, Social and Cultural Rights *ICPD International Conference on Population and Development IFP Inkatha Freedom Party IMF International Monetary Fund IPV intimate partner violence ITNs insecticide treated bed nets IWW International Workers of the World LGBT lesbian, gay, bisexual, and transgender LRA Lord’s Resistance Army MCH maternal child health *MDGs Millennium Development Goals MoHSW Ministry of Health and Social Welfare MMR maternal mortality ratio MSM men who have sex with men NAFTA North American Free Trade Agreement NALSA National Legal Services Authority NGO nongovernmental organization NHRI national human rights institution *ODA official development assistance OHCHR UN Office of the High Commissioner for Human Rights PEPFAR U.S. President’s Emergency Program for AIDS Relief PHR Physicians for Human Rights PHU primary health unit PJF Policia Judicial Federal (Federal Judicial Police of Mexico) PLWAs persons living with HIV/AIDS PMA Pharmaceutical Manufacturers Association PMTCT prevention of mother-to-child transmission PPP public-private partnership PTSD Post-traumatic Stress Disorder *QALYs quality-adjusted life years SAM social accountability monitoring *SBA skilled birth attendant *SDGs Sustainable Development Goals SRH sexual and reproductive health SRHR sexual and reproductive health and rights TBA traditional birth attendants UDHR Universal Declaration of Human Rights UHC universal health coverage UNDP United Nations Development Programme UNICEF United Nations Children’s Fund WHO World Health Organization

      Introduction

      How Do We Understand Suffering?

      We humans can tolerate suffering: we cannot tolerate meaninglessness.

      —Desmond Tutu, Believe: The Words and Inspiration of Desmond Tutu

      Human rights are being violated on every continent…. Human suffering anywhere concerns men and women everywhere.

      —Elie Wiesel, Nobel Peace Prize Acceptance Speech, December 10, 1986

      Before I had my two children, I had a miscarriage. I was living in New York City at the time and medically it was not a major event. I required surgery, but I was admitted to the hospital very early in the morning and by that same evening I was released and at home. Of course, emotionally it was deeply, deeply painful. Earlier, I had been invited to go on a human rights fact-finding delegation to the state of Chiapas in southern Mexico that was scheduled for the week after my unexpected miscarriage. I had lived in Mexico for years and been to Chiapas many times before, and the political events that prompted the delegation felt very immediate to me. And, undoubtedly to escape the emotional pain I felt and to stop feeling sorry for myself, the very next week I did indeed go.

      Chiapas is the state where the Zapatista Army of National Liberation (EZLN, according to its Spanish acronym) had launched its revolt on the day that the North American Free Trade Agreement (NAFTA) went into effect on January 1, 1994. The EZLN was protesting economic and political policies that left indigenous people systematically marginalized and impoverished. Its goals included achieving basic citizenship rights, indigenous control over resources (especially land), and demilitarization of indigenous areas.1 In December 1997, when I was there on this occasion, paramilitary violence was at its height in Chiapas. The Mexican government was exploiting religious and political fault lines in these impoverished indigenous communities and arming paramilitary groups with Orwellian names, such as “Peace and Justice,” in order to terrorize potential Zapatista sympathizers. On December 22, 1997, thirty-six women and children were killed in Chenalhó, a community in los Altos, the “mountainous region,” of Chiapas.2 In the weeks preceding the Acteal massacre, as it came to be called, an upswing in violence had already exacerbated the displacement of Zapatista-sympathizing communities.

      It was in one of those communities of internally displaced persons that I encountered a woman who was hemorrhaging as a result of a miscarriage. She was just about at the same stage of pregnancy as I had been the week before. However, in her case the hemorrhage was a life-or-death situation. She was weak from the loss of blood and

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