The SAGE Encyclopedia of Stem Cell Research. Группа авторов

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The SAGE Encyclopedia of Stem Cell Research - Группа авторов

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transformation, the field of advocacy is inherently rooted in social justice. Whatever the approach taken, one of the main roles of the advocate is to raise awareness of a problem or injustice, that is, to educate others—from constituent communities to government officials and/or the public—about the particular issues of interest for those on whose behalf the advocate works. As such, advocacy has long been considered to be a key tool in achieving social justice in all fields and at all levels where it is practiced.

      Advocacy Today

      Among the advocacy fields of note today, two stand out for their significant expansion and public importance: science and social media.

      Many crucial public policy decisions today have strong science imperatives, such as stem cell research, cloning, climate change, environmental depredation, food safety, and others. Policy decision makers often request and benefit from the research and expertise of science professionals. However, whether scientists ought to advocate specific projects and policies is today a matter of heated debate among scientists, academics, and the public. Scientists are viewed, increasingly, as playing a larger role than solely offering expert opinions. Some, instead, are assuming advocacy roles in specific policy decision making. Such a role could have important outcomes for government and sometimes even corporate policy decisions, as in the case of projects in private research institutions.

      Science has traditionally been expected to meet ideal standards for unbiased objectivity, neutrality, and impartiality. However, scientists are human and therefore meet such standards imperfectly; yet, they are still expected to constantly work toward producing solidly neutral advice, because science opinions carry great weight in many decision-making arenas. When scientists and science advisers promote advocacy science, some experts argue, such advice loses credibility. They may be inclined to slant scientific research results or advice by using information selectively to support their case. Others argue that all of society benefits when experts participate in public debate on policy issues.

      Well-prepared scientists can provide solid information from their scientific expertise, which may point out questionable facts or support developing policy issues and legislation. Some argue that there is always the risk that those experts may place their desired policy outcomes ahead of the basic principles of sound, objective science. In such a case, public debate and information is damaged because the factual basis of knowledge is biased and thereby distorted. Even worse, these issues might become a risk to public safety if some scientists and researchers actively advocate policies that permit the distribution of products that may be harmful to public health.

      Others, who support the importance of advocacy in science, as is the case of some who work for environmental concerns, for example, explain that there are many ways to increase the impact of science on policy decision making without perverting scientific knowledge. Standard practices such as peer review by various independent experts; the alignment of scientific information and outcomes with social, ecological, economic information and results; and multidisciplinary advice on risks and costs, among other measures, should be able to control for biased information and outcomes. These measures, some experts argue, would allow science experts and scientists to be active and engaged participants in policy processes and decision making without unethically leaning toward preselected results. Nevertheless, the debate over the boundaries between advocacy and science continues, as do concerns over how and in which contexts science experts should influence policy outcomes.

      Advocacy science today is discussed in many fields, such as environmental concerns, climate change, public health issues, and food safety standards. Among recent important issues that have caused advocates to debate for and against them are topics such as the stem cell research debate. Stem cell advocates have long worked to ease federal restrictions on stem cell research and pressure the federal government, through the National Institutes of Health and the Food and Drug Administration, to expand grant investment in stem cell research and establish safety guidelines for embryonic stem cell therapies, respectively. Advocates argue that stem cell treatments offer the possibility to bring affordable cures for many human diseases that are, to date, high in cost and suffering.

      There are many ways in which scientists can participate in policy making. For example, in order to deal ethically and appropriately with the many issues arising from new medical scientific technology, President Barack Obama instituted the Presidential Commission for the Study of Bioethical Issues (Bioethics Commission) in 2009. Presidential commissions have a long history and differ in topics of study and methodology, depending upon presidential appointment and the topics of importance of the day. The Bioethics Commission comprises a group of scientists and science experts in different fields, such as science, medicine, ethics, religion, engineering, and law. These experts advise the president on issues related to biomedicine and areas of science and technology associated with biomedicine. It provides a platform for scientists and experts to weigh in on policies meant to ensure that scientific research, health care practices, and related new technologies are developed in an ethically responsible and socially safe manner.

      Some of the issues up for debate in science advocacy today, besides the nature of advocacy in the science fields, for example, run along ethical imperatives, such as the borderline between patient protection and patient choice, patient information, genetic engineering and food safety, and euthanasia and cloning, among other issues. To date, advocates, science professionals, and ethics experts continue to build frameworks for debate that can be used in different fields to further these issues.

      Social media advocacy is a cutting-edge trend in the field of advocacy. It has not only transformed and globalized the practice but also interconnected advocates and advocate groups, vertically and horizontally, more than ever before. The phenomenon has transcended specific causes and language barriers, creating active cross-cultural and transnational global networks of activism and advocacy. These interconnections often include civil society and government contacts that emulate the development, outreach, and fund-raising organizational work in the field. However, Internet speed and social media networks today allow advocate work to expand at a speed and to a reach never achieved before.

      When the digital phenomena of global social networks became widespread, their use as traditional publishing media platforms was still deemed mostly as a limited or negligible channel to engage with the public—and more specifically, interested stakeholders—in a meaningful way. The perceived incapability of social networks as a way of gaining respectful public attention through digital means made it unattractive to people interested in gaining the trust of their constituents and the public at large.

      Today, social media platforms comprise a profoundly different medium than it was at their inception. In effect, social media are more engaging, attractive, demanding, and harder to manage than traditional media. As the reach of traditional media channels declines, private and public institutions have opened up to the idea that they must engage differently with parties of interest and adopt innovative channels of communication to connect with their constituents and general public. This has given rise to the phenomenon of social media advocacy. Moreover, during the last decade, as advocate activists, professionals, and organizations increasingly try to satisfy the public preference for more authentic and personalized ways of reaching out, the role of personalized social media connections has become increasingly crucial. Many users have found that social media allow them to build connections and dialogue with other members of their social media networks, especially on topics of mutual interest. The fact that this can be managed both at the local level and worldwide, with access to free translation digital programs, greatly enhances its possibilities for advocacy.

      Another benefit of social media is that not only are they user friendly but they also offer the availability of multimedia convergence, and a measurable impact for very little money. Therefore, they constitute a tool that individuals and grassroots organizations can use as effectively as professional advocacy groups. Social media, however, bring with them new responsibilities. Users must be aware of the double-edged impact of publications if they become viral and must exercise

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