Genetic Disorders and the Fetus. Группа авторов

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G, Pugh J, Kahane G, et al. How should we deal with misattributed paternity? A survey of lay public attitudes. AJOB Empir Bioeth 2017; 8:234.

      308 308. Prero MY, Strenk M, Garrett J, et al. Disclosure of misattributed paternity. Pediatrics 2019; 143:e20183899.

      309 309. Beauchamp T, Childress J. Principles of biomedical ethics. Oxford: Oxford University Press, 2013.

      310 310. Gert B, Culver CM, Clouser KD. Bioethics: a systematic approach, 2nd edn. New York: Oxford University Press, 2006.

      311 311. Josen AR, Siegler M, Winslade WJ. Clinical ethics: a practical approach to ethical decisions in clinical medicine. New York: McGraw Hill, 2010.

      312 312. Chico V. Reasonable expectations of privacy in non‐disclosure of familial genetic risk: what is it reasonable to expect? Eur J Med Genet 2019; 62:308.

      313 313. Lucast EK. Informed consent and the mis attributed paternity problem in genetic counseling. Bioethics 2007; 21:41.

      314 314. Weil J, Ormond K, Peters J, et al. The relationship of nondirectiveness to genetic counseling: report of a workshop at the 2003 NSGC Annual Education Conference. J Genet Couns 2006; 15:85.

      315 315. American Medical Association. Code of Medical Ethics § 2.131 Disclosure of familial risk in genetic testing, 2014–2015. Chicago, IL: American Medical Association, 2015.

      316 316. American Society of Human Genetics, Social Issues Subcommittee on Familial Disclosure. Professional disclosure of familial genetic information. Am J Hum Genet 1998; 62:474.

      317 317. National Society of Genetic Counselors. NSGC Code of Ethics sec. II, pt. 7.

      318 318. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Screening and counseling for genetic conditions. Washington, DC: US Government Printing Office, 1983:478.

      319 319. US Department of Health and Human Services, Office for Civil Rights. Standards for privacy of individually identifiable health information. Code of Federal Regulations vol. 45, parts 160, 164 (2002), as amended (2013).

      320 320. Capron AM. Autonomy, confidentiality and quality care in genetic counseling. In: Capron AM, Lappe M, Murray RF, et al., eds. Genetic counseling: facts, values and norms. New York: Alan R. Liss, 1979:307.

      321 321. Menko FH, Aalfs CM, Henneman L, et al. Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists. Fam Cancer 2013; 12:319.

      322 322. Lacroix M, Nycum G, Godard B, et al. Should physicians warn patients' relatives of genetic risk? Can Med Assoc J 2008; 178:593.

      323 323. Van den Heuvel LM, Huisinga MJ, Hoedemaekers YM, et al. Informing relatives at risk of inherited cardiac conditions: experiences and attitudes of healthcare professionals and counselees. Eur J Hum Genet 2019; 27:1341.

      324 324. Dove ES, Chico V, Fay M, et al. Familial genetic risks: How can we better navigate patient confidentiality and appropriate risk disclosure to relatives? J Med Ethics 2019; 45:504.

      325 325. Dufrasne S, Roy M, Galvez M, et al. Experience over fifteen years with a protocol for predictive testing for Huntington disease. Mol Genet Metab 2011; 102:494.

      326 326. Van Haecke DD, de Montgolfier S. Genetic diseases and information to relatives: practical and ethical issues for professionals after introduction of a legal framework in France. Eur J Hum Genet 2018; 26:786.

      327 327. Falk MJ, Dugan RB, O'Riordan MA, et al. Medical geneticists' duty to warn at‐risk relatives for genetic disease. Am J Med Genet 2003; 120A:374.

      328 328. Milunsky A. Genetic disorders and the fetus: diagnosis, prevention, and treatment, 2nd edn. New York: Plenum Press, 1986.

      329 329. Milunsky A, Jick H, Jick SS, et al. Multivitamin/folic acid supplementation in the earliest weeks of pregnancy reduces the prevalence of neural tube defects. JAMA 1989; 262:2847.

      330 330. MRC Vitamin Study Research Group. Prevention of neural tube defects: results of the Medical Research Council Vitamin Study. Lancet 1991; 338:131.

      331 331. Milunsky A. Know your genes. Boston, MA: Houghton‐Mifflin, 1977.

      332 332. Hsia YE, Hirschhorn K, Silverberg RL, et al. Counseling in genetics. New York: Alan R. Liss, 1979.

      333 333. Lewis C, Mehta P, Kent A, et al. An assessment of written patient information provided at the genetic clinic and relating to genetic testing in seven European countries. Eur J Hum Genet 2007; 15:1012.

      334 334. Frets PG, Duivenvoorden HJ, Verhage F, et al. Factors influencing the reproductive decision after genetic counselling. Am J Med Genet 1990; 35:496.

      335 335. Milunsky A. How to have the healthiest baby you can. New York: Simon & Schuster, 1987.

      336 336. Kung JT, Gelbart, ME. Getting a head start: the importance of personal genetics education in high schools. Yale J Biol Med 2012; 85:87.

      337 337. Milunsky A. Choices, not chances: an essential guide to your heredity and health. Boston, MA: Little, Brown, 1989.

      338 338. Milunsky A. Heredity and your family's health. Baltimore, MD: Johns Hopkins University Press, 1992.

      339 339. Milunsky A. Your genes, your health: a critical family guide that could save your life. Oxford: Oxford University Press, 2012.

      340 340. Mersch J, Brown N, Pirzadeh‐Miller S, et al. Prevalence of variant reclassification following hereditary cancer genetic testing. JAMA 2018; 320(12):1266.

      341 341. Cantebury v. Spence, 464 F.2d 772 (D.C. Cir. 1972).

      342 342. Carrieri D, Dheensa S, Doheny S, et al. Recontacting in clinical practice: the views and expectations of patients in the United Kingdom. Eur J Hum Genet 2017; 25:1106.

      343 343. Laurie G. Privacy and the right not to know: a plea for conceptual clarity. In: Ruth C, Mairi L, Darren S, eds. The right to know and the right not to know: genetic privacy and responsibility. Cambridge: Cambridge University Press, 2014: 38.

      344 344. Committee of the International Huntington Association and the World Federation of Neurology. Guidelines for the molecular genetics predictive test in Huntington's disease. J Med Genet 1994; 31:555.

      345 345. Hunter AGW, Sharpe NF, Mullen M, et al. Ethical, legal, and practical concerns about recontacting patients to inform them of new information. In: Sharpe NF, Carter RF, eds. Genetic testing. care, consent and liability. New York: John Wiley & Sons, 2006.

      346 346. Sirchia F, Carrieri D, Dheensa S, et al. Recontacting or not recontacting? A survey of current practices in clinical genetics centres in Europe. Eur J Hum Genet 2018; 26:946.

      347 347. Bombard Y, Mighton C. Recontacting clinical genetics patients with reclassified results: equity and policy challenges. Eur J Hum Genet 2019; 27:505.

      348 348. Mink v. University of Chicago, 460F. Supp. 713 (N.D.Ill.1978).

      349 349. Tresemer v. Barke, 86 Cal. App.3d 656, 150 Cal. Rptr 384 (1978).

      350 350. Pelias MZ. Duty to disclose in medical genetics: a legal perspective. Am J Med Genet 1991; 39:347.

      351 351. Hirschhorn K, Fleischer LD, Godmilow L, et al. Duty to re‐contact. Genet Med 1999; 1:171.

      352 352.

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