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1 1 Written by People with Aids (PWA) in 1983, available at: http://lemegalodon.net/a6507-les-principles-de-denver.html.
2 2 From Vesale to the Renaissance, medicine has been defined as being more interested in organs, the fragmentation of the indivisible individual and the aggression of disease, than in the patient (Le Breton 1990).
3 3 For example, TRT-5 for “treatment and therapeutic research” and “5” for the 5 associations behind the initiative against HIV/AIDS; then the Collectif interassociatif sur la santé (CISS) in France and the European Aids Treatment Group (EATG) in Europe.
4 4 While the complaints mainly incriminated the pharmaceutical laboratories in the United States – with foreign plaintiffs to whom the contaminated blood products were exported – in France it was a lawsuit against failing institutions and a questioning of policy that gave rise to the scandal, and in Canada it was the Red Cross and its officials who were quickly targeted by the complaints.
5 5 Recovery, initially initiated by Alcoholics Anonymous, is based on mutual aid between people living with the same illness, somatic or psychic. Individuals can thus manifest themselves through group dynamics, such as the self-help groups from which they come, or, as is increasingly developing in the 21st century, within a professionalized framework in the dual accompaniment of peers and health and social work professionals whose action is dedicated to their peers. A salutogenesis approach has therefore been developed as an alternative to the historical pathogenesis approach.
6 6 French health democracy has been initiated in other countries, mainly European, such as Belgium or Germany, without any of them having a framework law of this magnitude.
7 7 The etymology of individual, individuum in Latin, calls us precisely to consider the person as indivisible.
8 8 Organizations ranging from services to regional health agencies (Agences régionales de santé, ARS).
9 9 This has become a recommendation in the United States since the Macy’s founding workshop in 2014 and was initiated in 2019 at the Cote d’azur University in France with the Center of Excellence for Patient and Public Partnership (CI3P).
10 10 Bureau facultaire de l’expertise patient partenaire (BFEPP) a Partner Patient Expertise Faculty Office from 2010 to 2013, then Direction collaboration and partnership patient (DCPP) from 2013.
11 11 It is one of the proposals of the CEPPP organized around three streams: research, training and animation of communities of practice and therefore networks.
12 12 https://ceppp.ca/fr/ressources/.
13 13 https://ceppp.ca/fr/nos-projets/boite-a-outils-devaluation/.
Chapter written by Luigi FLORA.
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