Is the Punishment: Handling Cases in a Lower Criminal Court. New York: Russell Sage.46 Feuillet-Liger, Brigitte and Kristina Orfali (eds.). 2018. The Reality of Human Dignity in Bioethics and Law: Comparative Perspectives. Dordrecht: Springer.
47 Feuillet-Liger, Brigitte, Kristina Orfali, and Thérèse Callus (eds.). 2013. Families and End of Life Treatment. An International Perspective. Paris: Bruylant.
48 Fischer, Jill A. 2009. Medical Research for Hire: The Political Economy of Pharmaceutical Clinical Trials. New Brunswick, NJ: Rutgers University Press.
49 Foucault, Michel. 1976. Volonté de savoir. Histoire de la sexualité. vol. 1, chapitre V, “Droit De Mort Et Pouvoir Sur La Vie.” Paris: Gallimard.
50 Fox, Renée C. 1959. Experiment Perilous: Physicians and Patients Facing the Unknown. Glencoe, IL: Free Press. mm.
51 Fox, Renée C and Judith Swazey. 1974. The Courage to Fail: A Social View of Organ Transplant and Dialysis. Chicago, IL: University of Chicago Press.
52 Fox, Renée C and Judith Swazey. 2005. “Examining American Bioethics: Its Problems and Prospects. Quo Vadis? Mapping the Future of Bioethics.” Cambridge Quarterly of Health Care Ethics 14:361–373.
53 Fox, Renée C and Judith Swazey. 2008. Observing Bioethics. New York: Oxford University Press.
54 Goldman, Jerry and Martin Katz. 1982. “Inconsistency and Institutional Review Boards.” Journal American Medical Association 248:197–202.
55 Goldstein, Adam, Pamela Frasier, Peter Curtis, Alfred Reid, and Nancy E. Kreher. 1996. “Consent Form Readability in University-Sponsored Research.” Journal of Family Practice 42:606–611.
56 Gray, Radford H. 1975. Human Subjects in Medical Experimentation: A Sociological Study of the Conduct and Regulation of Research. New York: Wiley.
57 Guillemin, Jeanne H and Lynda L Holmstrom. 1986. Mixed Blessings: Intensive Care for Newborns. New York: Oxford University Press.
58 Halpern, Sydney. 2001. “Constructing Moral Boundaries: Public Discourse on Human Experimentation in Twentieth-Century America.” Pp. 69–89 in Bioethics in Social Context, edited by Barry Hoffmaster. Philadelphia, PA: Temple University Press.
59 Hauschildt, Katrina and Raymond DeVries. 2019. “Reinforcing Medical Authority: Clinical Ethics Consultation and the Resolution of Conflicts in Treatment Decisions.” Sociology of Health & Illness 42(2):307–326.
60 Hedgecoe, Adam. 2004. “Critical Bioethics: Beyond the Social Science Critique of Applied Ethics.” Bioethics 18(2):120–143.
61 Heimer, Carol A and Lisa R Staffen. 1998. For the Sake of Children: The Social Organization of Responsibility in the Hospital and in the Home. Chicago, IL: University of Chicago Press.
62 Henderson, G. Michele Easter, Catherine Zimmer, Nancy King, Arlene Davis, Barbara Rothschild et al. 2006. “Therapeutic misconception in early phase gene transfer trials.” Social Science & Medicine 62(1):239–53.
63 Hoffmaster, Barry (ed.). 2001. Bioethics in Social Context. Philadelphia, PA: Temple University Press.
64 Horner, Claire, Andrew Childress, Sophia Fantus, and Janet Malek. 2020. “What the HEC-C? an Analysis of the Healthcare Ethics Consultant-Certified Program: One Year I.” The American Journal of Bioethics 20:3, 9–18.
65 Hughes, Everett C. 1958. Men and Their Work. Glencoe, IL: Free Press.
66 In re Quinlan, 70 NJ 10 (1976).
67 Jonsen, Albert R. 1998. The Birth of Bioethics. New York: Oxford University Press.
68 Kauffman, Sharon R. 1995. “Decision Making, Responsibility and Advocacy in Geriatric Medicine.” Gerontologist 35:481–488.
69 Keirns, Carla, Michael Fetters, and Raymond De Vries. 2009. “Bioethics and Medical Education.” Pp. 174–190 in Handbook of the Sociology of Medical Education, edited by C. Brosnan and B. Turner. London: Routledge.
70 Keith-Spiegel, Patricia and Gerald P. Koocher. 2005. “The IRB Paradox: Could the Protectors Also Encourage Deceit?” Ethics & Behavior 15: 339–349.
71 Kim, Scott, Lauren Schrock, Renee M. Wilson, Samuel A. Frank, Robert G. Holloway, Karl Kieburtz and Raymond G. De Vries. 2009. “An approach to evaluating the therapeutic misconception.” IRB, 31(5), 7–14.
72 Kingori, Patricia, Kristina Orfali, and DeVries Raymond. 2013. “Bioethics in the Field.” Social Science & Medicine 98:260–263.
73 Lee, Lisa M. and Frances A. McCarty. 2016. “Emergence of a Discipline? Growth in U.S. Postsecondary Bioethics Degrees.” Hastings Center Report 46(2):19–21.
74 Marshall, Patricia. 2001. “A Contextual Approach to Clinical Ethics Consultation.” Pp. 137–152 in Bioethics in Social Context, edited by Barry Hoffmaster. Philadelphia, PA: Temple University Press.
75 Molewijk, Albert C., Anne Stiggelbout, Willem Otten, Helen Dupuis, and Job Kievit. 2003. “Implicit Normativity in Evidence-based Medicine: A Plea for Integrated Empirical Ethics Research.” Health Care Analysis 11:69–92.
76 Morreim, E. Haavi. 2001. “From the Clinics to the Courts: The Role Evidence Should Play in Litigating Medical Care.” Journal of Health Politics, Policy and Law 26(2):409–428.
77 Muller, Jessica H. 1991. “Shades of Blue: The Negotiation of Limited Codes by Medical Residents.” Social Science & Medicine 34:885–898.
78 Myser, Catherine (ed.). 2011. The Social Functions of Bioethics around the Globe. Oxford: University of Oxford Press.
79 Ogien, Ruwen. 2018. “Human Dignity: A Notion that Provides More Confusion than Clarity.” Pp. 283–286 in The Reality of Human Dignity in Law and Bioethics, edited by Feuillet-Liger Brigitte and Kristina Orfali. Berlin: Springer.
80 Orfali, Kristina. 2004. “Parental Role and Medical Decision Making: Fact or Fiction? A Comparative Study of French and American Practices in Neonatal Intensive Care Units.” Social Science & Medicine 58:2009–2022.
81 Orfali, Kristina. 2017. “Extreme Prematurity: Creating Iatrogenic Lives.” The American Journal of Bioethics 17(8):34–35.
82 Orfali, Kristina. 2018. “Getting the Story Straight: Clinical Ethics as a Distinctive Field.” The American Journal of Bioethics 18(6):62–64.
83 Orfali, Kristina and Elisa J. Gordon. 2004. “Autonomy Gone Awry: A Cross-Cultural Study of Parent’s Experiences in Neonatal Intensive Care Units.” Theoretical Medicine 25:329–365.
84 Orfali, Kristina. 2020. “Getting to the Truth: Ethics, Trust and Triage in United States versus Europe during the Covid-19 Pandemic.” The Hastings Center Report (forthcoming).
85 Parnami, Sonali, Katherine Lin, Kathryn Bondy Fessler, Erica Blom, Matthew Sullivan, and De Vries Raymond. 2012. “From Pioneers To Professionals.” Cambridge Quarterly of Healthcare Ethics 21:104–115.
86 Patient Self Determination Act of 1990, 101st Congress
